Friday, 11 December 2015

A Swing and a Miss!

We have been waiting for months for the results of a genetic test and today we got the call that Lowes Syndrome has been officially ruled out!

This is good news but it also means we still don't have a diagnosis; there is still a great big unknown looming over us.  So what is the next step?  More genetic testing.  Testing that involves comparing both John and I's genes with Gideon's.  We also have a date in January to see a neurologist in followup to the MRI we had.

So the game of Pinata continues...

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