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Tuesday 23 January 2018

Same old... with a little new.

Let's see...

Life has been pretty consistent around here.  Gideon has had multiple cases of pneumonia since our last post.  Only one required hospitalisation- for about 2 weeks in September?  The rest we managed to deal with in house.  This week he has an ear infection and is on antibiotics again.  So sleep has been a precious commodity.   

We have been using the feeding pump more.  We have had less vomiting when the feeds are slower and he seems to tolerate larger amounts.  We are still trying to introduce solids but the battle with oral sensitivity rages on.  We have started paying for a private OT who is regarded as a sensory guru in our area and are hoping to make some progress this year.

On the positive side on things, for the first time since before he had teeth, he brought food (a tortilla chip counts as food right?) up to his mouth and nibbled.  Sure he spat it out all over the place and kept wiping his mouth/tongue with his hand but I consider this a milestone in his sensory journey.

Later this week we will be meeting with the school in regards to Gideon starting kindergarten in the fall.  We are not sure if we are going to hold him back a year.   There are so many things to consider and it feels rather over whelming.   All the accommodations that need to be made make my head spin.

Look out 2018... Here we come, one day at a time.

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